86 STAT. ]
PUBLIC LAW 92-294-MAY 16, 1972
137
F I N D I N G S A N D DECLARATION OF PURPOSE
SEC. 2. (a) The Congress finds and declares— (1) that sickle cell anemia is a debilitating^ inheritable disease that afflicts approximately two million American citizens and has been largely neglected; (2) that the disease is a deadly and tragic burden which is likely to strike one-fourth of the children born to parents who both bear the sickle cell trait; (3) that efforts to prevent sickle cell anemia must be directed toward increased research in the cause and treatment of the disease, and the education, screening, and counseling of carriers of the sickle cell t r a i t; (4) that simple and inexpensive screening tests have been devised which will identify those who have the disease or carry the t r a i t; (5) that programs to control sickle cell anemia must be based entirely upon the voluntary cooperation of the individuals involved; and (6) that the attainment of better methods of control, diagnosis, and treatment of sickle cell anemia deserves the highest priority. (b) I n order to preserve and protect the health and welfare of all citizens, it is the purpose of this Act to establish a national program for the diagnosis, control, and treatment of, and research in, sickle cell anemia. AMENDMENTS TO P U B L I C H E A L T H SERVICE ACT
SEC. 3. (a) Section 1 of the Public Health Service Act is amended g/statf'iso^e!' by striking out "titles I to X " and inserting in lieu thereof "titles 42 USC 201* I to X I ". n°te. (b) The Act of July 1, 1944 (58 Stat. 682), as amended, is amended by renumbering title X I (as in effect prior to the enactment of this Act) as title X II, and by renumbering sections 1101 through 1114 (as in effect prior to the enactment of this Act), and references thereto. as sections 1201 through 1214, respectively. (c) The Public Health Service Act is further amended by adding after title X the following new title: 42 USC 300. "TITLE X I — S I C K L E C E L L A N E M I A P R O G R A M "SICKLE
CELL
A N E M I A S C R E E N I N G A N D C O U N S E L I N G PROGRAMS INFORMATION A N D EDUCATION PROGRAMS
AND
"SEC. 1101. (a)(1) The Secretary may make grants to public and nonprofit private entities, and may enter into contracts with public and private entities, for projects for the establishment and operation of voluntary sickle cell anemia screening and counseling programs, primarily through other existing health programs. "(2) The Secretary shall carry out a program to develop information and educational materials relating to sickle cell anemia and to disseminate such information and materials to persons providing health care and to the public generally. The Secretary may carry out such program through grants to public and nonprofit private entities or contracts with public and private entities and individuals. " (3) I n making any grant or contract under this title, the Secretary shall (1) take into account the number of persons to be served by the program supported by such grant or contract and the extent to which rapid and effective use will be made of funds under the grant or
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