100 STAT. 2032 42 USC 1395rr.
42 USC 1395rr.
PUBLIC LAW 99-509—OCT. 21, 1986
(c)(6) of section 1881 of such Act is amended by inserting before the period the following: "and that the maximum practical number of patients who are suitable candidates for vocational rehabilitation services be given access to such services and encouraged to return to gainful employment". (i) NATIONAL END STAGE RENAL DISEASE REGISTRY.—
(1) ESTABLISHMENT OF REGISTRY.—Subsection (c) of section
Reports.
Research and development.
42 USC 1395rr note.
1881 of such Act is further amended by adding at the end the following new paragraph: "(7) The Secretary shall establish a national end stage renal disease registry the purpose of which shall be to assemble and analyze the data reported by network organizations, transplant centers, and other sources on all end stage renal disease patients in a manner that will permit— "(A) the preparation of the annual report to the Congress required under subsection (g); "(B) an identification of the economic impact, cost-effectiveness, and medical efficacy of alternative modalities of treatment; "(C) an evaluation with respect to the most appropriate .:, allocation of resources for the treatment and research into the ^ cause of end stage renal disease; , "(D) the determination of patient mortality and morbidity rates, and trends in such rates, and other indices of quality of care; and "(E) such other analyses relating to the treatment and management of end stage renal disease as will assist the Congress in evaluating the end stage renal disease program under this section. The Secretary shall provide for such coordination of data collection activities, and such consolidation of existing end stage renal disease data systems, as is necessary to achieve the purpose of such registry, shall determine the appropriate location of the registry, and shall provide for the appointment of a professional advisory group to assist the Secretary in the formulation of policies and procedures relevant to the management of such registry.". (2) REPORT.—The Secretary of Health and Human Services shall submit to the Congress, no later than April 1, 1987, a full report on the progress made in establishing the national end
- fti, stage renal disease registry under the amendment made by
paragraph (1) and shall establish such registry by not later than • January 1, 1988. (j) FUNDING OF E S R D NETWORK ORGANIZATIONS.—
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42 USC 1395rr note.
(1) IN GENERAL.—Subsection (b)(7) of section 1881 of the Social Security Act is amended by adding at the end the following new VI sentence: "The Secretary shall reduce the amount of each composite rate payment under this paragraph for each treatment by 50 cents (subject to such adjustments as may be required to reflect modes of dialysis other than hemodialysis) and provide for payment of such amount to the network administrative organization (designated under subsection (c)(1)(A) for the network area in which the treatment is probrm vided) for its necessary and proper administrative costs incurred in carrying out its responsibilities under subsection (c)(2).". (2) EFFECTIVE DATE.—The amendment made by paragraph (1) shall apply to treatment furnished on or after January 1, 1987.
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