Page:United States Statutes at Large Volume 98 Part 1.djvu/193

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PUBLIC LAW 98-000—MMMM. DD, 1984

PUBLIC LAW 98-261—APR. 13, 1984

98 STAT. 145

Public Law 98-261 98th Congress Joint Resolution To designate the week of May 6, 1984, through May 13, 1984, as "National Tuberous Sclerosis Week".

Whereas tuberous sclerosis (hereafter in this joint resolution referred to as "TS") is a genetic disorder affecting as many as one in ten thousand Americans; Whereas TS remains poorly understood and frequently misdiagnosed even though it is one of the more common genetic disorders; Whereas TS affects both males and females and individuals of all races; Whereas characteristics of TS include skin markings, seizures, motor difficulties, mental retardation, tumors of the brain and other organs, and behavioral abnormalities; Whereas in any individual, the disease features and severity may vary from mild, when patients can live normal lives, to extreme, when TS is disabling and may be life threatening; Whereas modern research technology has increased the knowledge of TS, there remains much to be learned; Whereas only with continued, extensive research is there any chance of conquering this horrifying disesise; and Whereas establishing a National Tuberous Sclerosis Week would serve to increase public awareness of TS and stimulate research: Now, therefore, be it Resolved by the Senate and House of Representatives of the United States of America in Congress assembled, That the week of May 6, 1984, through May 13, 1984, is designated as "National Tuberous Sclerosis Week", and the President is authorized and requested to issue a proclamation calling on the people of the United States to observe the week with appropriate programs, ceremonies, and activities. Approved April 13, 1984.

LEGISLATIVE HISTORY—S.J. Res. 148: CONGRESSIONAL RECORD, Vol. 130 (1984): Feb. 27, considered and passed Senate. Apr. 3, considered and passed House.

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Apr. 13, 1984 [ g j Res. 148]